Archive for the 'Cushing Syndrome' Category

The CPD, Day 13

Morning BSers! Wondering where I have been? Well, here is your answer:

FLAT ON MY BACK.

 Sad but true, last Sunday Night, I zigged when I should have zagged & my lower back gave out on me completely. I was already having trouble W moderate pain in that area and it seized up so visciously that I merely slumped to the floor and lay there in pain for a good hour before scootching my way back to the couch where I have been ever since.

I can only crawl on my hands and my knees but that gets painful due to my ribs and also it hurts my knees. So sometimes I crawl to the rest-room And somtimes my wife just gets me a pee-bottle.

I do feel a little better. I was able to crawl in here today and haul myself on to the chair. And I can now pull myself up on things and stand for  a few brief moments.

In better news. I had a wonderful Thanksgiving. Ate Turkey and apples and some of the pumpkin pie we made from the hungry girl recipe. I also had a slice yesterday. It is so good I can’t even believe it is so low-calorie.

Well, being confined to the couch has certainly made calorie-watching, diet and not-bingeing at night a snap. I could not even if I wanted to.

later.

—Matt

The Couch Potato Diaries, Day Seven…

Good day, BSers! Mentally, I feel okay. Physically, I feel at one of my all-time worst levels ever. Friday night… chasing him around coupled with lifting him into the crib… oh my god, my back feels like it is shattered into a million pieces. I have shooting pains down my leg and my knees and feet ache. It is times like these when I wish I had some Lortabs or some Darvocets that I could take and drift back to sleep. Even coming in here and sitting in this uncomfortable-ass office chair is work enough.  It hurts. I am in pain. Enuff said.

I felt really bad for my wife having to get home yesterday evening after that long car trip (6 hours…??) and the house was a disaster. I worked really hard Friday and Saturday to tend to our son, chasing him around and changing him and you just don’t realize how much work that is when you are in so much pain. But we did have a good time overall and I don’t regret my decision and I did not tell my wife about the lifting-him-into-the-crib thing because there is no point in making her feel guilty about it. I did what I did and I do not regret it. I’m sure if I just take it easy today and maybe tomorrow I’ll feel good again.

But I still felt badly that the house is in such dissarray and she will have to clean it all up AND she has to get ready for Thanksgiving on Thursday. But really, she keeps saying she is looking forward to it and for years she has always “done” Thanksgiving. Starting in ‘03 when we were stationed elsewhere and on thru this year she has always had at least a few guests and done the whole works. She really does get some kind of thrill out of it which I guess is good. For the most part, we are unconventional in that we hate to cook so we all 3 have different foods at our meals. We do eat together when we can, but we eat different things. The Boy usually like to eat his stuff in addition to sampling ours. We think he actually has a pretty good, varied diet. he loves yogurt so we give him that a lot. And he liked applesauce and he loves fruit. He’ll eat Bananas, Apples cut into pieces with the skin off, prunes, strawberries, peaches and pears. We try to give him sugar free stuff as much as possible, not really because of diet concerns, but just because sugar isn’t good for you. But the bad part is, all that sugar-free stuff has either Splenda or Aspartame in it. So I try and watch that, too. I really think overall it’s not that bad for you, but they just don’t know FOR SURE. It’s one thing to drink diet soda yourself and make that decision but when you are entrusted to monitor the safety and food of your baby, you wonder about feeding them too much sugar, too much fat or too many artificial sweetners.

 But yeah he also loves broccoli and carrots. I swear, it’s so funny to ask a two year old if he wants broccoli and he loves it. I’ve taken him to restaurants before and he’ll leave the chicken, mashed potatoes and whatever while chowing down on steamed broccoli. I hope he stays that way in the long term. And we’ve never had to put cheese on it or anything. He just eats steamed or microwaved soft broccoli.

 But you know, I think it’s about what we eat. It’s not like we eat perfectly. I have my stupid binges and my wife likes a cheeseburger now and again but mostly we do eat a good diet and he sees that and wants to copy us. He also sees we are the type of family who likes to be fit and stay active ( Well… at least Mommy is active these days) and he imitates that. Remember before I’ve often blogged about when I could work out he would copy me, doing push-ups and leg lifts and lifting his little 3 pound weights which I thought was adorable at the time and which now I think it is hilarious that my two year old lifts the same amount that I can comfortably.

sigh.

Okay well, TV-wise I got to see LAST ONE STANDING, which you know is my favorite TV show right now. And they had to wrestle in Senegal. This is like the 3rd wrestling challenge they’ve had. And I really sympathized with Ryko, Raiko, or however you spell it… he got injured and could not compete. Now I’ve never been a top level athelete, but I loved to work out and I cherished my high activity level. So it is very very very hard for me not to be depressed about how extremely immobile I have become these days.

I dream so much about working out, lifting weights, running and doing new DVDs, kickboxing, dancing, etc…. I mean not daydreaming, but like when I am asleep I will dream about this stuff and then wake up and my body will be aching and it is very hard not to feel depressed about it all.

I watch these shows on TV about renovating your house or starting a garden and I just marvel at how physical these activities are and how much I took it for granted before.

I guess my consolation is that… hopefully… hopefully… this is a condition I can come back from. I am working on getting the Cushing’s Syndrome treated and also healing my back and my ribs which are the side effect of Cushing’s. We think.  I hope.

I can’t even imagine having my physicality and mobility taken away from me permanently. It has made me ponder a lot. What if I were to become a parapalegic? A quadrapeligic? What if all of a sudden I could never do anything physical again? I’d have to completely redefine who I was. My wife would have to do everything for the family FOREVER. Not just for a few months! How would I deal with that guilt? That I had suddenly become this burden on us? Would I be able to find a way to provide for my family? Would I be able to keep my spirits high and be pleasant to be around?

The Mommy and Her Mommy (my wonderful mother in law) have taken the Boy to the PARK and then grocery shopping and of course I could not go. On days when I feel even slightly up to it, I force myself out and about. Am I in extreme pain? yes but I go anyway, convinced I will not let this prevent me from having a good time with my family.

But today I just cannot. So oh well. I will try to enjoy myself around here, read some Blogs and at 11:30am Animal House is coming on. So I’ll watch that and have some lunch. My wife is also going grocery shopping today and I think later they are going to our friend’s house. I don’t think I will go. I just dread the thought of me sitting there in pain but pretending I’m not and to make it worse they’ll notice anyway and ask me about it and then we’ll have to have a 20 minute conversation about how much pain I’m in but pretending not to be and Gee what a Great Guy I must be to have all this pain but here I am out with my family and friends anyway.

Hahaha okay that’s kind of bitter and sarcastic there.

But it’s okay. I will just sit on the couch and enjoy some TV this evening and by Thursday I’ll feel great and I will enjoy having friends and family over and maybe I will even do a short dance just for them.

Oh yeah as far as weight loss and diet I’m kind of in this weird phase. I keep trying to get back on the “diet”… I am trying to eat between 1200-1500 calories a day which I figure is a good level for trying to lose a few pounds while being virtually sedentary, but I still get up and have these minor binges which has lead me to a plateu of 150 pounds.

I blogged earlier about how I’m not too beaten up about it, I have other things to worry about. Still, it would be nice to get the last ten vanity pounds off finally before the end of the year. And if I did it while sitting on the couch most of the time that would be hilarious. 150 isn’t the end of the world, but more…

really it’s more about when I wake up at 10pm or midnight or 2am… and you know you have that slight hunger pangs… because your body is dipping into fat stores and it doesn’t want to!! Your body is programmed to keep you at a certain weight. So at midnight my body goes “Wait a minute, we LIKE being at 150 with a little belly here! Don’t burn the fat cells, Matt! Get up and eat some cereal, eat some pizza, eat a cookie!” And if I just had the will-power to say, “No, no… let’s have some water and a diet coke and see what’s on TV or on BuddySlim” then I’d be okay.

But so far this week… the only thing that has saved me from GAINING weight it the fact that I resume my diet IMMEDIETLY the next day and I don’t tell myself “Oh I blew it for the day, week, et cet….” and eat crap all day.

So yeah today I’m trying again for 1200 calories, give or take and hopefully tonight I can finally get back in that groove. Once I get going, it gets easier and easier. I had that one 11-day streak. That got me down to 143, remember? Mmmm so close, and yet…

Sorry I don’t have a good joke for today. Maybe tomorrow.

—Matt

The CPD, Day Two… Answers!!

Guess what, BSers! I am so HAPPY and PSYCHED right now!

My doctor just called and said, based on tests so far and my symptoms… I may have something called Cushing’s Syndrome.

Go ahead, Google it up.

I had never heard of it before, but apparently it is based on elevated Cortisol levels. And it causes every single little problem I have been having over the past few years.

The hypertension. The weight gain. My “moon face”. The stretch marks. The bone loss. The muscle and joint aches. On and on and on.

They are referring me to an endocrinologist to verify the diagnosis and apparently the treatment is to find the cause, which is usually a benign tumor somewhere… and remove it. They say the initial operation success rate is 80 percent and if it doesn’t work the first time they simply repeat the surgery.

So if they find out what is causing this and remove it, it will fix ALL my problems! It is still a little bit of a battle ahead to heal from the ribs and treat this bizarre syndrome, but I am just so happy to finally have some answers and know this is not all in my head!

—Matt